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KMID : 0904520220590010005
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Health and Medical Sociology
2022 Volume.59 No. 1 p.5 ~ p.40
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Public Involvement and Engagement in Health Care Research: Focusing on the Concept and Cases of HRA in the U.K.
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Chung Eun-Joo
Lee Hyun-A
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Abstract
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With the development of participatory democracy, as well as efforts in academia and the field, having public voices be heard and included in ‘health care policy’ is no longer unfamiliar. Nevertheless, having public involved and/or engaged in ‘health care research’ is still regarded as a new task area. However, a recent movement, mainly being performed by National Evidence-Based Healthcare Collaborating Agency(NECA), of ‘Patient and Public Involvement in Health Technology Assessment’ and Patient-centered Research Project’ suggest that demand and need for “public involvement and engagement in research” may gradually expand in Korea. However, the concept of public involvement in research is still ambiguous, and there are limitations in the absence of a theoretical basis. Therefore, this study intends to contribute to supplementing public involvement/engagement attempts in current domestic health care research by examining the concept of public involvement in research presented by the UK Health Research Authority(HRA) along with NIHR as well as public involvement/engagement program directly operated by HRA. For this purpose, firstly, it examined discussions on conceptual definition of public involvement/ engagement reviewed through previous studies(Chapter II), and reviewed current status of public involvement/engagement in health care research of Korea and areas that needed to be supplemented(Chapter III). Secondly, as a reference case that actively implements public involvement/engagement in health care research, it introduced UK and HRA's three conceptual definitions such as public participation, involvement, and engagement and examined respective three public involvement and engagement cases―(1) Setting out to present information on public involvement plan within IRAS(a system for applying for the permissions and approvals for health, social and community care research in the UK), (2) Covid-19 Matching Service’, and (3) Make it Public Project’(Chapter IV). Lastly, this study reviewed issues and implications to consider when promoting public involvement and engagement in future health care research in Korea(Chapter V).
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KEYWORD
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Citizen Science, Patient and Public Involvement in Health Technology Assessment, Health Research Authority(HRA), Public Involvement, Integrated Research Application System(IRAS)
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